Home SWEET Home!- Living with Cystic Fibrosis

Rojeana Auriel Hall

I am finally home! And it feels wonderful to be back!

After the bad nose bleed on Sunday, the ENT finally came to see me around 5pm and placed a packing in my nose to stop the bleeding. Today the packing was removed, and now I can eat, breathe and actually taste my food. The ENT just said to keep my nose moist with saline and ointment (whoop-tee-do). There are polyps in my nose, but there isn't enough to remove them, so it would be a pointless surgery.

My oxygen, on the other hand, is kind of crappy still. I switched to a mask rather than a nasal cannula (due to the nose bleeds). But then I realized the mask is not compatible with my portable oxygen tank and that means I cannot leave my house. So mom, the doctor and I are currently trying to figure out what other device I can use with the oxygen tank, without drying up my nose. On the plus side, I have gained weight! <--words you probably won't hear from another girl, EVER. Gaining weight for me is important because it helps boost my immune system. Therefore, when I do gain weight, it is a cheerful moment! My cheeks are the first to get chubby and full....then my booty (haha).

School is crazy! I am definitely trying my best to keep up and earn a decent grade. I have had to contact my teachers, the disabilities office, and my advisor to figure out how to work with the classes. So far, the advisor and two teachers have been helpful! However, one teacher thinks I should "medically withdraw" from the class...and I think: HELL NO. I am already paying for the class and I seriously believe I can pass it. Next week I have 2 finals (I think) and 2 midterms! And YES, I am nervous about taking them! I have done well with last year's exams and I know I can catch up and be ready for this semester's exams too. Unfortunately, I may have to switch to all online courses because walking is getting too tiresome. I'm bummed because I like human interaction and making fun of teachers or students in the class (I know, I'm horrible). The number one thing I am going to miss the most is hanging with my sorority sisters on campus!! I loved how I always ran into one, no matter where I went! I know they are always there for me, but I rather hang out in person than talking or texting on the phone! During the hospital stay some of them came to visit me and it was wonderful! Even though some couldn't visit or if I was in a "non-visitor" mood, it was super nice to get calls/messages from them! Being in one room for three weeks can drive a person crazy....and they kept me sane!

I know I won't be off campus for long, because I am determined to get back as soon as possible! am not going to give up just yet! I'm going to "just keep swimming."
Thank you guys again for all the prayers, message and words of encouragement! You have nooooo idea how much that helps me to keep on striving!

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